EDS v M.E. v POTS — Mast Cells & Collagen Behaving Badly

It’s staggering the difference a continent makes. I’m on an American Ehlers-Danlos Syndrome (EDS) forum where no-one has ever heard of Myalgic Encephalomyelitis (M.E.). I’m also on a British EDS forum where many people have either had, or still have, a diagnosis of M.E. alongside their diagnosis of EDS (as I do). And on the... Continue Reading →

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What Is Dysautonomia? — Our Life is…

https://www.youtube.com/embed/ch6ipV3M4yo?version=3&rel=1&fs=1&autohide=2&showsearch=0&showinfo=1&iv_load_policy=1&wmode=transparent To understand dysautonomia, first you have to understand what the “autonomic nervous system” is. The autonomic nervous system is the part of the nervous system that controls the internal organs (blood vessels, stomach, intestines, liver, kidneys, bladder, genitals, lungs, pupils, heart, sweat/digestive/salivary glands). It basically runs your internal organs. It has two “modes” so... Continue Reading →

New Test for Histamine Intolerance

Mast Cells & Collagen Behaving Badly

A friend pointed me towards a link they’d seen in their Facebook news feed about a quick test being developed in Germany which anyone could use to measure the histamine content of their food. Can you imagine how absolutely brilliant that would be??!  To know that the food you are eating is actually low histamine, as against guessing its histamine content with nothing but your gut instinct to go on which is the situation at the moment.  It would be HUGE and totally revolutionize my, and thousands of other HIT sufferer’s, lives.

The FB link had come via Genny Masterman’s Histamine Intolerance website. I really like Genny’s site because we have views about HIT in common, for example this post about not believing all the crap online about histamine in foods and low histamine food lists, our distaste at the profiteering which goes on in the histamine world and…

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Site in progress…..

I'm very excited to be re-vamping my page.  It's been a couple years since I really took on my project of blogging. so now I am in the process of adding  and editing previous material. So if your are one of the few followers I have, look out for me soon and bare with me.... Continue Reading →

It’s not so fun to inject yourself…

For years, I have been the healthcare professional in which I have given numerous others IM or SQ injections via EMS transports. However, it is my turn to be the one on the receiving end. This past Friday was my second scheduled self injection of Humira. This medication is a TNF-Blocker Biologic used to treat my autoimmune... Continue Reading →

Duke POTS Symposium and CME 2015

  I had the pleasure of attending the 2015 Duke POTS Symposium a little over a month ago where Duke University Medical Center doctors and patients were presenting a CME symposium on POTS and associated conditions. It was a 2-day event. The first day I attended a social media round table and the second day... Continue Reading →

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